Oh barb! You poor lady
Headaches are my worst nightmare...

The rtx can effect your blood pressure
Which can give rotten head aches

I've got this stick from the chemist called 4head that's soothing

If you're rather low- it can make you want to sleep- I'm so sorry you're poorly

The ra is particularly vicious when it steals from you
I was horribly poorly after rtx but the others did brilliantly even if rough at the start

At least it's having *some* effect (hoping the positive ones are soon to follow!)

Love jenni x

Hi Barb,

So sorry to hear you are feeling rough after the Rituximab. The headache is I believe quite common and I certainly had it for a while after RTX infusions, plus the flushed face and going hot all the time. I also get these effects after a steroid infusion so I think the two together magnified the side effects. I also got sinusitis which gave a big headache too and seem to be prone to this.


However - to be more upbeat, the effects do wear off and for me the Rituximab has been a good drug, especially after second and third rounds. It did take about 8 weeks to notice the benefits, which may seem long but it does soon pass. I really, really hope that you will benefit too and it will make the side effects worthwhile.

I would report the side effects to the Rheumy team though as they would want to know about any symptoms for your records.
I am given a half dose each time now for various reasons including low BMI and it seems to do the trick just the same.

Give yourself some time and TLC and hopefully when you feel better you will be able to work a bit with little ones again. They do lift the spirits with their little ways and sayings don't they?:-)

Take good care,
Love Lizxx